This is the first year that Anna has had any understanding of Christmas - well, I'm not actually too sure exactly what she understood, but she has certainly been very excited! We have had lots of outings - we took Anna to Winter Wonderland one day when Jess was at her respite care home (we have taken Jess in previous years, but she hasn't always seemed to enjoy it - I think she gets too cold). Anna had a great time:
We went to a Christmas party - complete with a bouncy castle:
But, like any New Year, in a sense 2015 is a new start. We have some respite care in place for Jess, which is a life-saver; and the home adaptations are nearly complete. Jessica's state of health remains very unpredictable, but there is nothing we can do about that apart from being as prepared as we can for the inevitable emergencies (i.e. have a hospital bag packed at all times, ready to go etc).
Sooooooo...... my resolution for 2015 is for us to LIVE. Not be so overwhelmed and completely consumed by Rett Syndrome and its complications as we have been this year. I want time for us as a family, time to re-discover who I am, and to have a focus beyond Rett Syndrome. I want to spend some time with my lovely husband, and to enjoy both Jess and Anna at the various stages they are at.
Too much to ask? I'll let you know!