Thursday, 28 August 2014

arghhhhh....... Appointments

I posted here about how our world can seem like one big appointment sometimes. My whole life is scheduled around Jessica's various reviews and assessments. However, even bearing this in mind, the first week of September is ridiculous.

On Jess' first day back at school after the summer holidays, she has no less than 5 appointments scheduled, all at the same time, on the same day, in 3 different (and several miles apart) locations. Needless to say, no matter how I juggle this, she is not going to be able to make school!

Equally, with the best will in the world, I can't get Jess to all these appointments. But cancelling/re-scheduling appointments is not as easy as you may think. Some of the appointments are in clinics that only happen 4 times a year. Others are for investigations that need to be done in order for the results to be available for a future appointment. If they can't be done on the specified date, then the subsequent appointments will also have to be delayed.

And, obviously, every team thinks THEIR appointment should take priority. Even though I fully explain the situation to the various teams-and emphasised that it is not that we are not willing, or prepared to take Jess to these appointments, but it is just logistically impossible, they still talk to you as if you are being deliberately obstructive, and imply that you don't care about your daughter's health.

In the end we have managed to juggle timings, and while Jess will miss school that day she will, in theory,  be able to go to 4 out of the 5 appointments. I say "in theory" because clinics often overrun and have delays, so the day itself will be a bit of a juggling act too. But I think 4 out of 5 isn't too bad!!!!


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