Wednesday, 27 February 2013
She is so vulnerable
Jessica has no sense of fear or danger ,which means that she can’t be left alone at all. She will often fall back from sitting into a lying position on the floor; although she will go down in a controlled way and protect her head, she won’t check behind her to see that she won’t hit a wall, or land on toys or another child etc. She will also just crawl off any furniture like a bed or the sofa, and will try to stand up from the potty even if you aren’t ready, despite not being able to stand independently or balance.
The other day she was being looked after by someone I implicitly trust and, although Jessica was being held onto, she still managed to fall off the toilet. Initially we thought she had just cut her lip, but actually she had managed to knock one of her top teeth, causing it to be slightly wobbly. So the next day we made an emergency visit to the special needs dentist. The dentist thinks the tooth will be OK, which is a relief. However, she did say that had it been more serious, she would have had to give Jessica a general anaesthetic to examine her. This would be quite a big deal, as given our concern about seizures and all the other neurological oddities associated with Rett Syndrome, we have no idea how Jessica would react to a general anaesthetic. I know she will probably have to have one at some point (for example, even minor dental work such as a filling will require one) but I am dreading it. I was very relieved that, on this occasion, it wasn’t too serious. But it did highlight just how vulnerable she really is.